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A branch of the National Autistic Society

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NAS Avon Branch

A branch of the National Autistic Society

Research: Consultations and Surveys

Messsage from the University of Bath

 

We need autistic adults and adults without autism (aged 18-65) for our study at the Centre for Applied Autism Research, University of Bath.

 

We're investigating how autistic adults can be supported to recall personal information in important interview contexts, such as in the Criminal Justice System, healthcare consultations, and job interviews. Participants are paid £8 per hour for their time, and reasonable travel expenses can be reimbursed.

 

Please contact me with any questions and to enquire about taking part: Dr Jade Norris, Postdoctoral Research Associate on j.norris@bath.ac.uk or 07391 268 102.

Children living in mental hospitals should get help to get home. Always.

 

More than half of parents with children in mental health hospitals do not feel their child’s mental health has improved while in care. Twenty four percent of parents of children (including autistic children) who are sent to mental health hospitals think their child’s mental health has deteriorated a lot while in care.

 

We uncovered these shocking results through research carried out in partnership with mental health charity YoungMinds. This situation needs to change, urgently. That’s why this week, together with YoungMinds, we’ve launched the Always campaign. We are calling on the Government to set out strong, enforceable rights to protect children in mental health hospitals, and their families, when they need it most. The campaign calls for the NHS in England to adopt our new Always Charter (PDF download), which sets out twelve rights that young people in inpatient units and their families should always have.

 

Please sign the petition to make sure the voices of young people and their families are heard. Always. Sign the petition >

Please tell the CQC about your experiences of health and care - new online feedback facility.

 

The National Autistic Society is taking part in a national project with the CQC (Care Quality Commission, an independent regulator) called ‘Tell us about your care’. This will help the CQC to improve how services across the country support people with autism, including: Hospitals, GP practices, including walk-in centres and out-of-hours services, Dentists, Community care and support services, such as district nurses and health visitors, Clinics providing services such as family planning and slimming, Community mental health services, Ambulance services…etc.

 

How to feedback: If you or someone you care for have recently accessed a service that is subject to the CQC (e.g. the dentist or GPs) please feedback on this experience using this link: Click here

More information about this project can be found here click here

There are easy read materials about this project here. Click here

About the CQC - download here Click here  

About CQC – Click here

 

What to feedback: The CQC want to hear good and bad feedback. However, this is not a way to make a formal complaint or for whistleblowing. There are other ways to contact the CQC to do this, detailed on their website.

 

Further details are available on the ‘Tell us about your care’ guidance page but if you are not sure of anything you can also contact Tracey.Sellers@nas.org.uk

Help us share the stories of disabled children, young people and their families.

 

The National Autistic Society is part of the Disabled Children’s Partnership, which is launching an exciting new campaign this summer. We want you to be a part of it! The campaign will fight for better health and social care for disabled children, young people and their families in England. We are looking for individuals, families and carers to help tell the stories of living with a disability.

 

You can help us by participating in one or more of the following ways:

 

  • Sharing your email address and social media profiles so we can get in touch to ask you to support the campaign

  • Telling us your story and providing a picture that we can use for our blog or social media channels

  • Agreeing to appear in a short video to be used on our social media channels

  • Telling your story to a newspaper journalists and agreeing to have your photo used in the article

  • Telling your story to a TV or radio journalist

  • Sharing your story with a member of Parliament

  • Volunteering your time to help with the campaign

 

Please contact disabledchildrenspartnership@portland-communications.com if you would like to be involved.

Disabled Children’s Partnership launches the Secret Life of Us campaign

 

We are proud to be part of the Disabled Children’s Partnership – a coalition of more than 40 organisations who have joined together to fight for better health and social care for disabled children, young people and their families in England.

 

Our Too Much Information campaign is highlighting the negative impact the lack of public understanding of autism can have on families. Research by the Disabled Children’s Partnership shows that 97% of parents with disabled children, including children on the autism spectrum, say that people do not understand the challenges they face. To make matters worse, 69% of families with disabled children receive no support in caring for their child.

 

The Disabled Children’s Partnership, supported by The National Autistic Society, is today launching the Secret Life of Us campaign to change this and bring to life the challenges disabled children, young people and their families face. We need public support, understanding and empathy to effect change and make a lasting difference to the way disabled children, young people and their families are treated in society. In order to achieve the change we need, we will bring the realities of their lives closer to people across England. We will reveal the part of their lives that the public do not see.

 

We will reveal the Secret Life of Us. Help us fight to make this change.

 

Sign up to join the campaign >

 

Thank you for sharing your experience and views to help campaign for change for children on the autism spectrum in England.

My name is Jo. I work for the Research & Development Office in Avon & Wiltshire Mental Health Partnership NHS Trust and work closely with the Bristol Autism Spectrum Service (BASS).

 

We are currently trying to promote and offer the opportunity to adults (16+) with an autism diagnosis and relatives and close friends of adults with an autism diagnosis to take part in this large national research study called the Adult Autism Spectrum Cohort-UK (ASC-UK) Study.

 

The aim of the research is to find out more about the life experiences of adults on the autism spectrum. This information will then hopefully be used to help toward making improvements in the service offered to people in the autism community. Take a look at this poster for the study or this leaflet for more information.

 

People can find out more and sign up using this link: http://research.ncl.ac.uk/adultautismspectrum/ or they can be given a paper information and form to complete to find out more.

Blue Badge Consultation

 

The Government is proposing changing the eligibility criteria for the Blue Badge scheme to include people with non-physical conditions and to allow a range of healthcare professionals with specific expertise (other than the applicant’s GP) to undertake the assessments and to offer an automatic badge eligibility for people with non-physical disabilities who score 12 points under the PIP Activity – ‘Planning and Following Journeys’. The deadline for the consultation is 18th March.

 

View more information including the online survey here: https://www.gov.uk/government/consultations/blue-badge-disabled-parking-scheme-eligibility-review

Healthwatch South Gloucestershire has put together a survey about the Accessible Information Standard (AIS), which came into force in August 2016. This Standard sets out the support that people with a physical/ sensory impairment, or a learning disability should expect to receive when they use health and social care services.

 

Healthwatch South Gloucestershire is keen to find out:

  • if people have heard of the AIS

  • if people for whom the AIS applies are getting the information and support that they need

 

The survey can be completed online or via hard copies, upon request. People can also get in touch through a number of other ways:

Call:                     01454 543 402

Text:                    Text ‘sg’ followed by your story to 07860 021 603

Email:                  info@healthwatchsouthglos.co.uk

Write:                  Healthwatch South Gloucestershire, c/o The Care Forum, The Vassall Centre, Gill Avenue, Bristol BS16 2QQ

Website:             www.healthwatchsouthglos.co.uk

 

For more information on what ther accesssibile information standart is click here:AIS - NHS England link

 

Thank you from Healthwatch South Gloucestershire for taking the time to complete the survey. Your feedback will help us enormously.

Your feedback on Talking Therapies (IAPT) Please

 

Bristol, North Somerset and South Gloucestershire Clinical Commissioning Group (BNSSG CCG) wants to take this opportunity to re-design and re-procure a new Improving Access to Psychological Therapies (IAPT) service (sometimes called talking therapies) for people that live in Bristol, North Somerset and South Gloucestershire.

 

This presents an opportunity to improve the service without cutting the service or reducing the budget. There is more information attached. The CCGs are looking for your input and to hear the thoughts of the people you work with. If you could take a few minutes out of your day to participate in the short survey and to share with your network they would be extremely grateful.

 

Please find the survey here: https://www.surveymonkey.co.uk/r/6HM7C9R

Asha wishes to make contact with Carers/Parents of adults with Asperger Syndrome, to assist with research looking at how Creative Writing for Therapeutic Purposes (CWTP) can be an effective self care tool. Please see this letter for more informtaion.

 

Please contact Asha direct if you would like to participate or have any queries on asha.sahni@metanoia.ac.uk