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A branch of the National Autistic Society

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NAS Avon Branch

A branch of the National Autistic Society

Research: Consultations and Surveys

Messsage from the University of Bath

 

We need autistic adults and adults without autism (aged 18-65) for our study at the Centre for Applied Autism Research, University of Bath.

 

We're investigating how autistic adults can be supported to recall personal information in important interview contexts, such as in the Criminal Justice System, healthcare consultations, and job interviews. Participants are paid £8 per hour for their time, and reasonable travel expenses can be reimbursed.

 

Please contact me with any questions and to enquire about taking part: Dr Jade Norris, Postdoctoral Research Associate on j.norris@bath.ac.uk or 07391 268 102.

Please tell the CQC about your experiences of health and care - new online feedback facility.

 

The National Autistic Society is taking part in a national project with the CQC (Care Quality Commission, an independent regulator) called ‘Tell us about your care’. This will help the CQC to improve how services across the country support people with autism, including: Hospitals, GP practices, including walk-in centres and out-of-hours services, Dentists, Community care and support services, such as district nurses and health visitors, Clinics providing services such as family planning and slimming, Community mental health services, Ambulance services…etc.

 

How to feedback: If you or someone you care for have recently accessed a service that is subject to the CQC (e.g. the dentist or GPs) please feedback on this experience using this link: Click here

More information about this project can be found here click here

There are easy read materials about this project here. Click here

About the CQC - download here Click here  

About CQC – Click here

 

What to feedback: The CQC want to hear good and bad feedback. However, this is not a way to make a formal complaint or for whistleblowing. There are other ways to contact the CQC to do this, detailed on their website.

 

Further details are available on the ‘Tell us about your care’ guidance page but if you are not sure of anything you can also contact Tracey.Sellers@nas.org.uk

Blue Badge Consultation

 

The Government is proposing changing the eligibility criteria for the Blue Badge scheme to include people with non-physical conditions and to allow a range of healthcare professionals with specific expertise (other than the applicant’s GP) to undertake the assessments and to offer an automatic badge eligibility for people with non-physical disabilities who score 12 points under the PIP Activity – ‘Planning and Following Journeys’. The deadline for the consultation is 18th March.

 

View more information including the online survey here: https://www.gov.uk/government/consultations/blue-badge-disabled-parking-scheme-eligibility-review

Healthwatch South Gloucestershire has put together a survey about the Accessible Information Standard (AIS), which came into force in August 2016. This Standard sets out the support that people with a physical/ sensory impairment, or a learning disability should expect to receive when they use health and social care services.

 

Healthwatch South Gloucestershire is keen to find out:

  • if people have heard of the AIS

  • if people for whom the AIS applies are getting the information and support that they need

 

The survey can be completed online or via hard copies, upon request. People can also get in touch through a number of other ways:

Call:                     01454 543 402

Text:                    Text ‘sg’ followed by your story to 07860 021 603

Email:                  info@healthwatchsouthglos.co.uk

Write:                  Healthwatch South Gloucestershire, c/o The Care Forum, The Vassall Centre, Gill Avenue, Bristol BS16 2QQ

Website:             www.healthwatchsouthglos.co.uk

 

For more information on what ther accesssibile information standart is click here: AIS - NHS England link

 

Thank you from Healthwatch South Gloucestershire for taking the time to complete the survey. Your feedback will help us enormously.

Bristol, North Somerset and South Gloucestershire (BNSSG) Clinical Commissioning Groups (CCGs) are working to develop a strategy for urgent care which will ensure that care is delivered in a way that meets the needs of the local population.

 

‘Urgent care services’ describes the range of health care services available to people who need medical advice, diagnosis or treatment quickly and unexpectedly. This includes everything from same day GP appointments, minor injury units and A&E departments.

 

To inform the development of the strategy, we would like to understand the experiences and views of the public when making decisions about, and using, urgent care services across BNSSG.

 

Please could you take five minutes to complete our BNSSG Urgent Care Strategy Survey

 

If you are interested in helping us develop the strategy by attending future workshops please email: urgentcare.bnssg@nhs.net.

To all residents in South Gloucestershire:

 

“South Gloucestershire Council and partners are working together to review autism services and wider community aspects related to autism. As part of this we want to understand your experience of autism in South Gloucestershire to develop the recommendations for the autism needs assessment. The survey takes about 5 minutes to complete and will be open until Wednesday 21st March.”

 

Here is brief summary and link: https://wh.snapsurveys.com/s.asp?k=151973710538

The NAS are looking for your stories to be featured on the NAS website and social media during this year’s TMI campaign (although we can’t guarantee everything we receive will be featured).

 

We want to know about situations when members of the public could have been more helpful (and what they could have done), and also situations when someone did something that really helped and was a positive experience.

 

That could be:

An example of dealing with unexpected changes, how that made you feel and what could have made the situation easier.

An example of a time you felt anxiety around social situations, what happened and how did people respond? What could have been done to make you feel more comfortable?

  • An example of needing extra processing time, and how someone could have communicated with you to avoid you feeling overloaded?

  • An example of sensory sensitivity, how this can cause problems for you or an example of when someone made a situation easier for you.

  • An example of overload and meltdown, and what other people do which can help, or that you find really unhelpful.

  • We would like to hear your experiences when out and about, such as at work, at school, on public transport or at the shops.

 

If you would like to share your story with us and help us show people the small changes they can make to become more autism friendly the best thing to do is get in touch with Rhiane Green (Senior Branch and Engagement Officer) on Rhiane.Green@nas.org.uk with a short summary of what you would like to tell us, and the best way to contact you. They will then get in touch to find out more.

 

Thank you very much.

"Tell us about your care"

 

The Care Quality Commission (CQC) is the independent regulator of health and adult social care in England. The CQC wants to hear from people it doesn’t usually hear from and so are running their ‘Tell us about your care’ project.

 

This project aims to make it easier for autistic people, their families, and the professionals who support them to pass on information about the experiences and needs of children and adults with autism directly to the CQC.

 

This will help the CQC to improve how services across the country support people with autism, including hospitals, dentists, GP practices etc.

 

This project has been set up so that anyone can tell the CQC about the care they receive, good or bad, so it can be used to help improve the overall quality of care provided in England.

 

To have your say, or direct families who’d like to, please visit - http://www.cqc.org.uk/share-your-experience-finder?referer=nas