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A branch of the National Autistic Society

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NAS Avon Branch

A branch of the National Autistic Society

Consultations and Surveys

Take part in a study about repetitive thinking in Autism!

 

My name is Steph Calley and I am a researcher at the University of Bath in the new Centre for Applied Autism Research. It has been suggested that people with Autism think more repetitively and/or think more visually than those without Autism, but this hasn’t been tested so let’s find out!

 

I am therefore looking for participants that meet the following criteria:

·         A formal diagnosis of Autism/Asperger’s/Autism Spectrum Condition/Autism Spectrum Disorder/High-Functioning Autism

·         Aged 16+

·         Have an Android or iPhone (to download a free app)

 

You would need to complete some short questionnaires with me in person – either at the University of Bath or I can travel to a local but public place near you – and download a free app which will alert you 5 times a day for 5 days. At each alert you will write down your thoughts in response to three simple questions in a booklet. After the 5 days, freepost us the booklet, complete one short questionnaire and you’re done!

 

There is a prize draw to win one of two £30 Amazon vouchers and any travel will be reimbursed. Please email me at shrc20@bath.ac.uk with any questions or to take part. My working days are Mon-Thu.

As part of our ongoing public understanding campaign, Too Much Information, we’re gathering real stories from autistic people, their families and friends. Sharing these stories (in the media, on social media and in newsletters) helps us to show people the reality of life on the autism spectrum and improve public understanding of autism.

 

This year, we want to share examples of how family, friends, colleagues – or even strangers – can help to make life a little easier for autistic people by making small changes to the way they behave.  For instance, a cashier at a shop recognising that a customer is feeling overwhelmed and giving them time and space.

 

If you, or someone you know, can tell us about your experiences of people being understanding or offering support in everyday situations, we’d love to hear from you.

  • Perhaps someone in a shop showed kindness and consideration when things were getting overwhelming in the queue?

  • Maybe a friend helped prepare for a day out by sending you the information you needed in advance, and keeping to plan?

  • Or, could it be that a colleague changed their way of communicating with you to make it easier for you to process what they were saying?

 

If you’d like to tell us about your experiences, please email tmi@nas.org.uk.

 

Please include:

  • Your full name

  • The way you’d like to be contacted (email or phone), and phone number if the latter

  • Your age

  • Where you live (i.e. your town or city)

  • Whether you’re autistic and how you describe your autism

  • Whether you’d be happy to be filmed or photographed, if required

  • Whether you’re happy to be in the media (a newspaper, TV or radio)

  • A short summary of your story of public understanding or support (100-200 words)

 

We look forward to hearing from you. Best wishes, The NAS Campaigns Team

Children living in mental hospitals should get help to get home. Always.

 

More than half of parents with children in mental health hospitals do not feel their child’s mental health has improved while in care. Twenty four percent of parents of children (including autistic children) who are sent to mental health hospitals think their child’s mental health has deteriorated a lot while in care.

 

We uncovered these shocking results through research carried out in partnership with mental health charity YoungMinds. This situation needs to change, urgently. That’s why this week, together with YoungMinds, we’ve launched the Always campaign. We are calling on the Government to set out strong, enforceable rights to protect children in mental health hospitals, and their families, when they need it most. The campaign calls for the NHS in England to adopt our new Always Charter (PDF download), which sets out twelve rights that young people in inpatient units and their families should always have.

 

Please sign the petition to make sure the voices of young people and their families are heard. Always.

 

Sign the petition >

Please tell the CQC about your experiences of health and care - new online feedback facility.

 

The National Autistic Society is taking part in a national project with the CQC (Care Quality Commission, an independent regulator) called ‘Tell us about your care’. This will help the CQC to improve how services across the country support people with autism, including: Hospitals, GP practices, including walk-in centres and out-of-hours services, Dentists, Community care and support services, such as district nurses and health visitors, Clinics providing services such as family planning and slimming, Community mental health services, Ambulance services…etc.

 

How to feedback: If you or someone you care for have recently accessed a service that is subject to the CQC (e.g. the dentist or GPs) please feedback on this experience using this link: Click here

More information about this project can be found here click here

There are easy read materials about this project here. Click here

About the CQC - download here Click here  

About CQC – Click here

 

What to feedback: The CQC want to hear good and bad feedback. However, this is not a way to make a formal complaint or for whistleblowing. There are other ways to contact the CQC to do this, detailed on their website.

 

Further details are available on the ‘Tell us about your care’ guidance page but if you are not sure of anything you can also contact Tracey.Sellers@nas.org.uk

West of England Centre for Independent Living (WECIL) are looking at setting up new social groups for disabled people in North Somerset. They are running consultation events for all to attend (Carers and Family support welcome). Please see this flier for most information.

Help us share the stories of disabled children, young people and their families.

 

The National Autistic Society is part of the Disabled Children’s Partnership, which is launching an exciting new campaign this summer. We want you to be a part of it! The campaign will fight for better health and social care for disabled children, young people and their families in England. We are looking for individuals, families and carers to help tell the stories of living with a disability.

 

You can help us by participating in one or more of the following ways:

 

  • Sharing your email address and social media profiles so we can get in touch to ask you to support the campaign

  • Telling us your story and providing a picture that we can use for our blog or social media channels

  • Agreeing to appear in a short video to be used on our social media channels

  • Telling your story to a newspaper journalists and agreeing to have your photo used in the article

  • Telling your story to a TV or radio journalist

  • Sharing your story with a member of Parliament

  • Volunteering your time to help with the campaign

 

Please contact disabledchildrenspartnership@portland-communications.com if you would like to be involved.

I am working to find out more about how parents talk about autism with their children on the autism spectrum and would be incredibly grateful if you would consider completing our short (10-15 min) survey.

 

The link to the survey is here: https://www.surveymonkey.co.uk/r/RYHZGBG. The survey will close on Friday 9th June 2017.

 

Thank you, Morvarid Taghrizi, postgraduate student in the Centre for Research in Autism and Education (CRAE) at UCL Institute of Education.

My name is Priya Parmar and I am a postgraduate student at the Department of Psychology in Anglia Ruskin University. I am investigating gender differences and the motivation for circumscribed interests (special interests) which can therefore further contribute to research in Autism and the diagnosis. If you wish to take part in my study or for further information, please click this link: https://aruspsych.eu.qualtrics.com/jfe/form/SV_6rsmweTnvGVOvgF

 

It is a short 20- 30 minute questionnaire with a specific focus on gender differences in autism.  My research is aimed at diagnosing Autism or individuals with an Autism Spectrum Disorder earlier in life, based on research of circumscribed interests (special interests) in the autistic and normal population.

 

I am very passionate about this area of research, as there are many females left undiagnosed and with some individuals only receiving a diagnosis at a later age in life. Many females with autism mention how it is a relief to be diagnosed as they had always felt they were different to everyone else, as they struggle socialise etc. No one should ever be made to feel this way just because autism is stereotypically associated with males or individuals are misdiagnosed. I believe my research would contribute to research dedicated to diagnosing females with autism.

 

Any queries or for further information, contact Priya direct on Priya.Parmar1@student.anglia.ac.uk