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A branch of the National Autistic Society

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NAS Avon Branch

A branch of the National Autistic Society

Research: Consultations and Surveys

Messsage from the University of Bath

 

We need autistic adults and adults without autism (aged 18-65) for our study at the Centre for Applied Autism Research, University of Bath.

 

We're investigating how autistic adults can be supported to recall personal information in important interview contexts, such as in the Criminal Justice System, healthcare consultations, and job interviews. Participants are paid £8 per hour for their time, and reasonable travel expenses can be reimbursed.

 

Please contact me with any questions and to enquire about taking part: Dr Jade Norris, Postdoctoral Research Associate on j.norris@bath.ac.uk or 07391 268 102.

Healthwatch South Gloucestershire has put together a survey about the Accessible Information Standard (AIS), which came into force in August 2016. This Standard sets out the support that people with a physical/ sensory impairment, or a learning disability should expect to receive when they use health and social care services.

 

Healthwatch South Gloucestershire is keen to find out:

  • if people have heard of the AIS

  • if people for whom the AIS applies are getting the information and support that they need

 

The survey can be completed online or via hard copies, upon request. People can also get in touch through a number of other ways:

Call:                     01454 543 402

Text:                    Text ‘sg’ followed by your story to 07860 021 603

Email:                  info@healthwatchsouthglos.co.uk

Write:                  Healthwatch South Gloucestershire, c/o The Care Forum, The Vassall Centre, Gill Avenue, Bristol BS16 2QQ

Website:             www.healthwatchsouthglos.co.uk

 

For more information on what ther accesssibile information standart is click here: AIS - NHS England link

 

Thank you from Healthwatch South Gloucestershire for taking the time to complete the survey. Your feedback will help us enormously.

Bristol, North Somerset and South Gloucestershire (BNSSG) Clinical Commissioning Groups (CCGs) are working to develop a strategy for urgent care which will ensure that care is delivered in a way that meets the needs of the local population.

 

‘Urgent care services’ describes the range of health care services available to people who need medical advice, diagnosis or treatment quickly and unexpectedly. This includes everything from same day GP appointments, minor injury units and A&E departments.

 

To inform the development of the strategy, we would like to understand the experiences and views of the public when making decisions about, and using, urgent care services across BNSSG.

 

Please could you take five minutes to complete our BNSSG Urgent Care Strategy Survey

 

If you are interested in helping us develop the strategy by attending future workshops please email: urgentcare.bnssg@nhs.net.

"Tell us about your care"

 

The Care Quality Commission (CQC) is the independent regulator of health and adult social care in England. The CQC wants to hear from people it doesn’t usually hear from and so are running their ‘Tell us about your care’ project.

 

This project aims to make it easier for autistic people, their families, and the professionals who support them to pass on information about the experiences and needs of children and adults with autism directly to the CQC.

 

This will help the CQC to improve how services across the country support people with autism, including hospitals, dentists, GP practices etc.

 

This project has been set up so that anyone can tell the CQC about the care they receive, good or bad, so it can be used to help improve the overall quality of care provided in England.

 

To have your say, or direct families who’d like to, please visit - http://www.cqc.org.uk/share-your-experience-finder?referer=nas

Two Important Surveys for Carers to Fill Out

 

The first is a national survey called State of Survey, which is sent out annually by Carers UK. Some of you may have filled this out before. It covers a wide range of issues affecting carers, mostly around health and social care. This will enable Carers UK to lobby for changes at a national policy level. Please click here for the National State of Caring Survey.

 

The second, is a local survey for carers in Bristol and South Gloucestershire, and focuses specifically on carers breaks. Through our support of carers, Carers Support Centre is aware that there are many barriers and obstacles that carers face when trying to take a much needed break from their caring role. We’re trying to gather more information about this and would really appreciate your help with this. This information will be extremely valuable to help us to make recommendations on how short breaks services can be improved. The deadline to fill this out is Friday 8th June. Please click here for the Short Breaks Survey for Carers in South Gloucestershire and Bristol.

 

It should take up to five minutes to fill out each survey (ten minutes in total). If you need help filling the survey out, please do let us know.

 

Thanks so much for your help with this.

Caroline McAleese | Carers Engagement & Involvement Lead, Carers Support Centre, Tel: 0117 958 9989 (Normal working days are Tuesday – Thursday)

Sign our open letter to make public transport autism-friendly

 

Autistic people and their families have told us how hard using public transport can be. You’ve already helped by pledging to make a small change to help reduce the overload for autistic people. Now we need the people in charge of public transport to play their part. Will you sign our open letter to the UK’s public transport providers?

 

Unexpected changes when taking public transport can be overwhelming for autistic people. For some, the fear of unexpected changes could mean not even leaving the house. Autistic people and their families put so much effort into planning their journeys only for overwhelming noise, crowds and a lack of information to undo it all. We want to change that.

 

Transport providers, along with the Department for Transport, have the power to make public transport more autism friendly, benefiting the 3 million autistic people and their families across the UK.

 

We want to put pressure on transport providers to make necessary changes – from better training for their staff to reducing excess noise and lighting – but we can only do that with your help.

 

By signing our open letter, you will be helping us to make the case to the Government and to transport providers as to why autism friendly transport is so necessary and so important to so many.

 

Sign our letter >  Let's make public transport autism-friendly